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updated 9 Feb 2012, 15:24
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Thu, Feb 09, 2012
Simply Her
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Being HIV-positive has not destroyed my will to live
by Siow Yuen Ching

"When my husband passed away three years ago, he gave me something to remember him by. It wasn’t material riches or the undying love of a soulmate – he gave me HIV.

"Last year, I fell ill quite frequently and lost a lot of weight even though my eating habits hadn’t changed. And I was also exhausted all the time.

"Naturally, I was puzzled by this sudden change in my physical health. When I passed out from a persistent fever, nausea and body aches, I was rushed to hospital. The doctors couldn’t explain what was wrong with me – I’d tested negative for dengue fever and Chikungunya fever.

"In jest, I asked for a HIV test. Looking back, I don’t know why I did that, and I certainly didn't expect the result to be positive.

"When my doctor delivered the news, all I felt was shock and confusion. I never expected my husband of 20 years to die of AIDS; we were told that he died of complications from hypertension and heart disease. He was never tested for HIV.”

Moment of truth

"My husband and I met through a mutual friend and got married after dating for one-and-a-half years. He was outgoing and sociable and had many friends. Every few months, he’d holiday in Bangkok with his close buddies. He used to say he needed time out, and reassured me that he was there only to watch Thai boxing matches, not to sleep with other women.

" I believed my husband and never questioned his faithfulness. He was a kind-hearted and responsible family man. Now I know that was all a lie.

"Am I still angry with him? Of course! And I can’t believe how naive I was. There are so many questions I want to ask him, like how he could do something so dreadful, and one that would destroy our marriage and family? Who did he have sex with and why? We used to be each other's foundation, but he betrayed me."

Going downhill

“I became depressed after being diagnosed with HIV. I cried a lot and feared what would happen to me. All I knew about HIV was that its sufferers wasted away and died lonely, scorned by everyone except hospice workers and doctors. I knew there was no cure, so I was, in a sense, serving out a death sentence.

"For the longest time, I refused to get out of bed or eat; I even thought of suicide. I went from being an active, ambitious woman with a passion for life to someone I didn’t recognise – withdrawn, sickly, afraid. I lied about my poor health and made up excuses for not going out with my friends. I lied about everything, really.

"My children too became virtual strangers to me. They had trouble accepting my diagnosis and avoided me for a while. They stopped giving me hugs and kisses, and we no longer had intimate conversations. To outsiders we seemed like a close family, but that was just a facade.

Behind closed doors, the virus ruled our lives. My 17-year-old kept to herself and my 20-year-old son threatened to run away from home if I didn’t stop crying. I knew they were confused and frightened – they probably had no idea how to cope with a depressed and suicidal mum, who was once their pillar of strength.

"Then I met a social worker from voluntary community-based organisation Action For Aids (AFA). She encouraged me to meet other HIV sufferers. Gradually, I admitted to my children and my AFA support group that I was lonely and unhappy. Acknowledging my despair was a low point for me, although that's what it took for me to start anew."

A matter of choice

"It scared me to utter the words 'I am HIV-positive' to a group of strangers at the AFA. I was worried that none of them would want to come near me, but they accepted me like a sister.

"I haven't told my friends and relatives that I’m HIV-positive. It would ruin my reputation and my husband’s, for sure. How would I explain my late husband’s actions?

"For two years, I’ve been living with HIV, along with the shame, secrecy, pain and confusion that come with it. I can’t change anything now so I’ve decided to focus on living as good a life as I possibly can, and making the most of whatever time I have left in this world. The medication I’m on has definitely given me the strength to carry on with daily life. I’m also a lot better emotionally now.

"My change in attitude has not been lost on my children, who accompany me to medical check-ups, and make the effort to help me get through this. They know I need their love and support more than ever. I still cry about my situation – the isolation I feel is at times unbearable, and I have moments when I ask, ‘Why me?’.

"Many people think that if you have HIV, you're not a good person and you've been engaging in risky behaviour. But that's not true for me. I've never been unfaithful to my husband; in fact, he’s the only man I’ve ever had sex with. It’s these misconceptions about HIV that lead to discrimination against people like me.

"I try not to think about what's going to happen when my health worsens. I’m learning to make the most of each day and I'm definitely living positively."

* Name has been changed

Get a copy of the December 2009 issue of Simply Her to read about smart solutions for busy women. Simply Her published by SPH Magazines is available at all newsstands now. Siow Yuen Ching is a features editor with Simply Her magazine by SPH Magazines. Check out more stories at Simply Her online, www.simplyher.com.sg

readers' comments
my sympathies to this lady and her children
they are innocent

shame on the dead man....for misbehaving and causing such grieve to his family

i have absolutely no sympathies for the gay community who continues to engage in homosexual activities ... which is the main culprit for the spread of this cursed disease.... and to think they even have the cheek to ask for respectability in society.
Posted by frasier88 on Fri, 18 Dec 2009 at 01:39 AM
Dont accept your spouse or boy friend going to Bangkok to relax. Make sure he has blood test regularly 1 month after he returns from Bangkok. Dont have sex with him if you are not clear about his blood.
1 sex is enough to pass the HIV fluid from 1 body to another without condom.
Even condoms cannot assure HIV would not pass to the protected body. Condom is not 100% secure.
Dont do it with your spouse or intimate friend if s/he frequents night spots or Thailand. There are 1.4% of total Thai population has HIV or 620,000 adults. Majority should likely be sex workers. From TV interviews, many sex workers do not insist on using condoms. Imagine, the virus can be passed hundreds of times to these workers. Literary, the mixture is worst than the toilet bowls. So be safe, make sure s/he is .....
Posted by last_laugh on Thu, 17 Dec 2009 at 23:28 PM
No one will know the answer now as he is dead. There are other ways one can get HIV as well beside the sexual part.
Posted by working_class on Thu, 17 Dec 2009 at 13:40 PM
Only people who are sufferring or have suffered from terminal diseases and HIV will understand the feeling of one who is walking this lonely road...To me, her words are one of great courage and worthy of praise...Everyone can tell you to live each day at a time but when the time comes to practise it, I can tell you that it will not be easy...

The encouraging thing is that are new drugs that will allow one with HIV to carry on living quite a normal life, although 100% cure is not possible at this time...But I think it would be great that all of us who are running our busy lives always planning to do it tomorrow after we have made our millions, learn that, by the time you have your millions, you may not be able to enjoy it...so learn to set time aside for .....
Posted by kooldog59 on Thu, 17 Dec 2009 at 13:15 PM
in chinese word....husband 丈夫...meaning within 10 feet (丈)。。that is your ''private toy''.....otherwise he is a ''public property''........
Posted by New Wave on Thu, 17 Dec 2009 at 12:33 PM
Let us not judge. As we are judging people, people are also judging us. Passing judgement on others is a big waste time unless you are a paid court judge. Why not spend more time working to make money??

Been a wealthy nation and one that is aspiring to be compassionate, our govt/MOH should ensure that all only our best and brightest are taken care of but our weak and sick should also be given the best form of help such as care and treatment/meds.
Posted by & then on Thu, 17 Dec 2009 at 11:57 AM
"outgoing and sociable and had many friends" - perhaps too outgoing with the other ladies of the night unfortunately for her & her family...wonder tho' why she didn't found out how the dummy-hubby died - from what ailment at the time of death e.g fr post mortem if any was conducted...strange..
Posted by chieftain on Thu, 17 Dec 2009 at 10:38 AM

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